This Web site is your entry point to the only national non-profit organization dedicated to both promoting research to find new treatments and a cure for Epidermolysis Bullosa and providing information and support for people with EB and their families.
It is the mission of PXE International to initiate, fund and conduct research; provide support for individuals and families affected by pseudoxanthoma elasticum; and provide resources for healthcare professionals.
Morphea, also known as localized scleroderma, is a form of scleroderma, a term that literally means "hard skin." The registry aims to answer the above questions by investigating genes and blood markers associated with morphea.